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Feeding Tips for Children With Sanfilippo Syndrome
Disabilities due to Sanfilippo syndrome can lead to challenges with eating and drinking that can make feeding patients difficult. The rare genetic disorder, also known as mucopolysaccharidosis type III (MPS III), results in an accumulation of complex sugar molecules called glycosaminoglycans (GAGs), or mucopolysaccharides. This accumulation can cause some developmental disabilities in the early stages of the disease and lead to loss of motor functions in the later stages.
There is no scientific evidence suggesting that a particular diet may improve symptoms of Sanfilippo syndrome. Some parents have reported that reducing milk, dairy, sugar, and artificial ingredients and colors helped with symptoms such as excess mucus, diarrhea, and hyperactivity. For patients with diarrhea, it may be helpful to decrease the amount of roughage, or fibrous foods, or add probiotic foods if the diarrhea is linked to antibiotic usage.
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